Wink from Heaven: Doctor, Doctor...

Wednesday, July 8, 2009

Doctor, Doctor...

Monday: A trip to Northwest orthotics so Caleb's legs and ankles could be casted for ankle/leg braces. Hopefully these braces will improve his range of motion in his ankles.

Tuesday: A trip to the pediatrician because I thought Caleb had a bladder infection. I was able to get my own sample so they wouldn't have to use a catheter, and sure enough, he does have an infection. Hopefully now that we have antibiotics, he'll finally start to feel better!

Tuesday: A trip to the hospital to have blood work done! At one point the needle slipped out and blood squirted everywhere. One of my boys thought it was "SO COOL" and the other just about fainted!

Wednesday: A trip to Primary Children's Hospital to have an emptying study. They put barium into Caleb's tummy and put him in an xray type machine. The machine took pictures every 30 seconds for an hour to see how Caleb's tummy is emptying.

2 comments:

Becky said...: what a BUSY week. I hope that Caleb is feeling better. How did you know he had a bladder infection? On never mind, I mus call you. :) I can't sleep anyway.; July 8, 2009 at 8:47 PM
Karen said...: Wow. What a brave little guy and a busy mom!; July 10, 2009 at 6:20 AM

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Prayer for Caleb

(written by Caleb's Grandma in her weekly column -2008-)

In my family we have a secret code to communicate our love for each other when we are out in public. We wink. When one of us is about to perform or speak, we look for a family member’s face in the crowd. Then we wink at each other. Closing one eye and winking is our secret code for saying, “I love you. You can do it. You’re wonderful.”

About three years ago, my grandson Caleb was born into our family. He must have known before birth that he would never be able to speak to us because he was born with one eyelid permanently closed. So, he is always “winking” at us, always communicating, “I love you. You can do it. You’re wonderful.”

Caleb has one eye lid permanently closed because he is missing one of his eyes . . . and he is also missing his brain. All the doctors said he would die soon after birth. They were wrong. Caleb is three years old. He is a medical miracle. The doctors say he can’t see, hear, speak, think or move. Those who know and love Caleb understand he has his own unique way of experiencing the world and communicating his love to those around him.

After Caleb was born the hospice people told us to buy a burial plot and continually warned us of his imminent death. We soon learned you can not live well in a state of fear and sadness. We decided we could spend Caleb’s entire life anxious and scared he might die at any moment, or we could celebrate each day we were blessed to have him with us. In the beginning, my daughter April celebrated Caleb’s birthday every week instead of every year with balloons and cupcakes because we simply did not know how long we would have him with us. We stopped the cupcakes after we gained ten pounds, but the celebrating goes on.

We all prayed for a miracle when we first learned about Caleb’s condition. We got one. Caleb’s birth, life and mission have had a deep and lasting impact on our lives. His spirit, eternal identity and most of all the loving, individual relationship he has with each of us is truly a miracle. Because of Caleb we know that each of us has a divine purpose and that the physical body is a sacred gift we should never take for granted. We better understand the worth of a soul and the resiliency of the human spirit.

Caleb’s five year old brother Matthew said, “Grandma. The doctors said Caleb was going to die, but he didn’t. That’s the first miracle I ever saw!”

Sometimes Caleb’s baby brother Mitchell pulls out his feeding tube while they hold hands riding together in their double stroller. Sometimes the only intervention that can get Caleb’s heart rate up is when his older brothers Josh and Matty crawl in his crib, hug him and sing, “I am a Child of God.” ...If you have a moment please offer a prayer for the little boy who has never been able to utter a single word and yet has taught everyone who knows and loves him – all the secrets of a rich and meaningful life.