Caleb had a busy week with follow up appointments at
Primary Children's Hospital.
One of his appointment days started with a little adventure: We left for the hospital at 6:45 AM, and by the time we got there, Caleb was smelling a little bit suspicious. I took him to the bathroom to check his diaper and sure enough the was an explosion clear up his whole back! Luckily I keep a spare pair of pants for him in the car... but no spare shirt. So after about 20 minutes, 200 wipes, and mental note to lysol the heck out of his stoller... I wheeled Caleb into the office-shirtless! Fortunately a nurse found him a fluffy white sweatshirt that made him look like a cute little marshmallow!
CT Scan: The results showed no change, and his head growth is still in check.
Neuro surgery: His shunt still looks good! We are so thankful that he hasn't needed any revisions!
Neurology: His seizures are under control, and we we may try to wean him off
Baclefan.
Pulmonology: They suggested some medications to consider if Caleb has excess secretions and his wheezing worsens (using singular along with his
flo vent, and using
tobi meds) But for now we all feel comfortable with what we're
already doing. We also increased the tidal volume on his ventilator to 145 to
accommodate his growth.
ENT: Caleb's
trach site is awesome! The doctor had some tips to help with Caleb's oozing ears. We're trying an anti fungal for yeast and are finishing an antibiotic to help with the infection.
Rehab Doctor: The curvature in Caleb's spine is gradually increasing, but we are just going to keep watching it. His G tube site looks great. We'll keep using
DAFOs for his ankles and will keep trying to find a bath chair
Blood work: His nutrition looks good, his
phenobarb level is in normal range, his thyroid was low so we're increasing his medication, and his sodium was a bit high .
Follow up: We were referred to endocrinology for his
sodium levels, thyroid, and body temperature irregularities.
Each doctor was so happy with how much better Caleb looked, and Caleb gave each one of them a heavenly smile to say thanks- even the lady who gave him his pokes.
