Saturday, December 31, 2011

Christmas for Caleb

On Christmas morning Caleb had a cozy place by the fire where his brothers could help him open his gifts and he could stay toasty and  warm.  It was sweet to see his brothers pile his gifts on his lap and be excited for him.  I love seeing my boys help Caleb experience the magic of Christmas, and I love the way Caleb shines with a Christmas spirit all year long.

I know if Caleb could speak he would want to thank his Dad for a gift he gives him every night.  We stay up late with Caleb every in order for his medication to take effect and to have some special snuggle time with him.  We usually tuck him into bed around midnight, but it usually isn't long until his alarms start beeping, he needs suctioning, he needs a diaper change or more medicine.  A few nights a week we have been blessed with night  nurses who sit with Caleb from 12-6 so we can get some sleep.  On the other nights Caleb is blessed with his sweet father. Dallan selflessly gets up with Caleb numerous times each night to turn, change, suction and love him.  He never complains, and quite often I'll hear him visiting with Caleb while tending to his needs.   I know that there will be a day when Caleb can wrap his arms around his father and thank him for the service he renders in those quiet hours of the night.  But in my heart, I think Dallan already knows.



Nativity Angel

Every year on Christmas Eve one of our favorite traditions is acting out the nativity. Caleb and his cousin Emma were the Angels this year...fitting don't you think?



Thursday, December 22, 2011

Heaven

I think a little bit of Heaven shines down on this little boy of mine.

Wednesday, December 21, 2011

Light

Caleb's eye really responds to light so we have a light box we use  to help him with vision. 
It touched my heart to see Mitchell pull it out so he could teach Caleb.
It melts me to see Mitchell so eager to share the light with Caleb
While at the same time Caleb teaches him what true light really is.
I hope my boys will never forget the light and love they feel when they spend time with Caleb.
For the way he shares his light is divine indeed.

Friday, December 9, 2011

Pink Cheeks

Pink Cheeks how we love thee, let us count the ways...
1. We love seeing you are getting enough oxygen
2. We love smooching them.
3. We love squishing them
Now we just need Caleb could stop wheezing so we could turn that oxygen down a bit... but hey, we'll take pink cheeks any way we can get them!

Thursday, December 8, 2011

Christmas Tree Sleeping

My sweet husband is a Christmas boy!  He was born on Christmas Eve and loves Christmas time as much as I do. When he was a little boy he would always beg his mom to sleep under the Christmas tree, and I think Caleb has inherited that same jolly gene.

What a gift these boy are to me...

Tuesday, December 6, 2011

Sweet words...

A few weeks ago I asked my Sister Arianne if she would take some pictures of our family to help ease that uneasy feeling I always have as the season changes. I worry about how Caleb will weather the Winter, and having some current images helped soothe the tug in my heart. Thank you Arianne, for snatching the last few minutes of day light to capture our little family.  She wrote a bit about our little family on her beautiful blog.  
My mom and I were also visiting recently about the most important lessons Caleb teaches us.  We reflected on the physical limitations of Caleb's body and how he teaches us it's who we are not what we do that matters most... She  gave the right words to the feelings in my heart that day.  You can read them here.  

Sleepy Time

As Caleb has grown, he's had a harder time sleeping on his own. We now give him Tarazadone at night time to help him fall asleep. I love watching his little body start to relax then finally doze off. There's nothing sweeter than a sleeping little boy...

Thankful

Caleb's primary class made him a special Turkey for Thanksgiving!  I was so touched by the things they thought of...
Caleb also has a vision specialist that comes to our home once a week.  For Thanksgiving she traced my hand with Caleb's and made feathers out of textured paper for him to feel.  I am so thankful for the sweet people who go out of their way to love and teach our sweet boy.