Wink from Heaven: Bladder battles

Monday, November 16, 2009

Bladder battles

Caleb is still battling bladder infections. These infections have been Caleb's greatest challenge for the past 4 months. He just started a second antibiotic to see if we can finally clear the current infection. Then, hopefully we'll find the right prophylactic dose so we can keep them from re-surfacing! We're crossing our fingers!
Dear Caleb,
Thank you for being brave while we try to figure out how to help you feel better. Even when you feel yucky, you still find sweet ways to reassure us that you know we are doing our very best. I love you my sweet boy.

8 comments:

Becky said...: Praying that these antibiotice WORK! I'm SO sorry that he has been struggling with terrible bladder issues. They are NO fun. Feel better soon Caleb! xoxo; November 16, 2009 at 8:04 AM
Janene Baadsgaard said...: I'm praying for you Caleb.; November 16, 2009 at 9:42 AM
Kel said...: Little sweet one. I hope you find the solution you need... and FAST.; November 16, 2009 at 12:11 PM
Ashley Dawn said...: Oh so sad. Antibiotic struggles are SO frustrating. Good luck finding the right solution!; November 16, 2009 at 3:42 PM
Shantelle said...: So sad, I hope he gets feeling better soon.; November 20, 2009 at 7:45 PM
Tara Bennett said...: Hoping you can get the right meds and get feeling better soon! HUGS!; November 21, 2009 at 4:57 PM
Jenn said...: That does not sound fun, hope you get the help you need so he can feel better soon!; November 22, 2009 at 8:17 PM
Lisa Christine said...: yes, that was you that I tagged :); November 23, 2009 at 9:48 PM

Prayer for Caleb

(written by Caleb's Grandma in her weekly column -2008-)

In my family we have a secret code to communicate our love for each other when we are out in public. We wink. When one of us is about to perform or speak, we look for a family member’s face in the crowd. Then we wink at each other. Closing one eye and winking is our secret code for saying, “I love you. You can do it. You’re wonderful.”

About three years ago, my grandson Caleb was born into our family. He must have known before birth that he would never be able to speak to us because he was born with one eyelid permanently closed. So, he is always “winking” at us, always communicating, “I love you. You can do it. You’re wonderful.”

Caleb has one eye lid permanently closed because he is missing one of his eyes . . . and he is also missing his brain. All the doctors said he would die soon after birth. They were wrong. Caleb is three years old. He is a medical miracle. The doctors say he can’t see, hear, speak, think or move. Those who know and love Caleb understand he has his own unique way of experiencing the world and communicating his love to those around him.

After Caleb was born the hospice people told us to buy a burial plot and continually warned us of his imminent death. We soon learned you can not live well in a state of fear and sadness. We decided we could spend Caleb’s entire life anxious and scared he might die at any moment, or we could celebrate each day we were blessed to have him with us. In the beginning, my daughter April celebrated Caleb’s birthday every week instead of every year with balloons and cupcakes because we simply did not know how long we would have him with us. We stopped the cupcakes after we gained ten pounds, but the celebrating goes on.

We all prayed for a miracle when we first learned about Caleb’s condition. We got one. Caleb’s birth, life and mission have had a deep and lasting impact on our lives. His spirit, eternal identity and most of all the loving, individual relationship he has with each of us is truly a miracle. Because of Caleb we know that each of us has a divine purpose and that the physical body is a sacred gift we should never take for granted. We better understand the worth of a soul and the resiliency of the human spirit.

Caleb’s five year old brother Matthew said, “Grandma. The doctors said Caleb was going to die, but he didn’t. That’s the first miracle I ever saw!”

Sometimes Caleb’s baby brother Mitchell pulls out his feeding tube while they hold hands riding together in their double stroller. Sometimes the only intervention that can get Caleb’s heart rate up is when his older brothers Josh and Matty crawl in his crib, hug him and sing, “I am a Child of God.” ...If you have a moment please offer a prayer for the little boy who has never been able to utter a single word and yet has taught everyone who knows and loves him – all the secrets of a rich and meaningful life.