Wink from Heaven: Showing signs of improvment

Thursday, May 26, 2011

Showing signs of improvment

Caleb had a good afternoon and showed reasonable improvement. The Respiratory therapists are slowly decreasing his peep on the ventilator, and his oxygen saturation has been much better! Caleb's labs are showing improvement and they were able to wean him off of dopamine! He's still got a ways to go, but I am really encouraged with his progress.
As I watch Caleb, I am so touched by his little spirit. When he looks at me with his red fevered little eye, I know he is trying to reassure me that all is well. Oh how I love my little boy.
Thank you for your prayers and concern for our little family. It has really touched our hearts.

9 comments:

Anonymous said...: Glad to hear Caleb has improved a little.

He is one amazing boy! x; May 26, 2011 at 11:11 PM
The Kings said...: So glad he is picking up. He was worrying me! Lots of prayers for you all.; May 27, 2011 at 3:49 AM
shirlgirl said...: Glad to hear that Caleb seems to be improving. Give him a big kiss for me.; May 27, 2011 at 5:16 AM
Becky said...: Please give him a squishy kiss for me on his sweet, fevered cheeks! Love you guys!; May 27, 2011 at 6:50 AM
Janene Baadsgaard said...: We're all praying for Caleb!; May 27, 2011 at 7:01 AM
Unknown said...: sweet sweet little boy...
xo; May 27, 2011 at 8:24 AM
brigette said...: Im glad to hear things are improving some! That is such a scary thing. Keeping your family in our prayers!; May 27, 2011 at 9:53 AM
Janae said...: Bless all of your hearts! Our prayers are with you!; May 27, 2011 at 4:03 PM
Lisa Christine said...: Oh happy day!

Here's hoping he keeps on the track towards recovery.

Sending sweet wishes his way....; May 27, 2011 at 8:48 PM

Prayer for Caleb

(written by Caleb's Grandma in her weekly column -2008-)

In my family we have a secret code to communicate our love for each other when we are out in public. We wink. When one of us is about to perform or speak, we look for a family member’s face in the crowd. Then we wink at each other. Closing one eye and winking is our secret code for saying, “I love you. You can do it. You’re wonderful.”

About three years ago, my grandson Caleb was born into our family. He must have known before birth that he would never be able to speak to us because he was born with one eyelid permanently closed. So, he is always “winking” at us, always communicating, “I love you. You can do it. You’re wonderful.”

Caleb has one eye lid permanently closed because he is missing one of his eyes . . . and he is also missing his brain. All the doctors said he would die soon after birth. They were wrong. Caleb is three years old. He is a medical miracle. The doctors say he can’t see, hear, speak, think or move. Those who know and love Caleb understand he has his own unique way of experiencing the world and communicating his love to those around him.

After Caleb was born the hospice people told us to buy a burial plot and continually warned us of his imminent death. We soon learned you can not live well in a state of fear and sadness. We decided we could spend Caleb’s entire life anxious and scared he might die at any moment, or we could celebrate each day we were blessed to have him with us. In the beginning, my daughter April celebrated Caleb’s birthday every week instead of every year with balloons and cupcakes because we simply did not know how long we would have him with us. We stopped the cupcakes after we gained ten pounds, but the celebrating goes on.

We all prayed for a miracle when we first learned about Caleb’s condition. We got one. Caleb’s birth, life and mission have had a deep and lasting impact on our lives. His spirit, eternal identity and most of all the loving, individual relationship he has with each of us is truly a miracle. Because of Caleb we know that each of us has a divine purpose and that the physical body is a sacred gift we should never take for granted. We better understand the worth of a soul and the resiliency of the human spirit.

Caleb’s five year old brother Matthew said, “Grandma. The doctors said Caleb was going to die, but he didn’t. That’s the first miracle I ever saw!”

Sometimes Caleb’s baby brother Mitchell pulls out his feeding tube while they hold hands riding together in their double stroller. Sometimes the only intervention that can get Caleb’s heart rate up is when his older brothers Josh and Matty crawl in his crib, hug him and sing, “I am a Child of God.” ...If you have a moment please offer a prayer for the little boy who has never been able to utter a single word and yet has taught everyone who knows and loves him – all the secrets of a rich and meaningful life.