
Caleb has had increased complications with his breathing ever since he was hospitalized last Spring for RSV. He obstructs his breathing often throughout the day, and when he's agitated we often have to hold his mouth open for him so that he can get a good breath. I scheduled Caleb for a tracheostomy surgery a few weeks ago because we wanted to see how we felt after taking a step in that direction. We've been really prayerful about whether or not this is right for Caleb. It has been a really difficult decision because Caleb has really good days, and then has really challenging days. On the good days, a trach doesn't seem necessary at all, but on the hard days, I can hardly bear to see how hard he works to breathe. Overall we've decided that a trach has a lot of potential to improve Caleb's quality of life, so we've decided to go ahead with the surgery which is scheduled for next Wednesday. We are also waiting to hear back about the possibility of doing a g tube surgery at the same time. My heart is so tender as I contemplate taking this step and changing the way we've taken care of Caleb up to this point. But I know Heavenly Father will wrap us all up in his arms and help us to have courage. If you have a quiet moment, please say a little prayer for our sweet boy!
6 comments:
My heart goes out to you and your family! Good Luck Caleb! I know Heavenly Father will watch over you! You are in our thoughts and our prayers!
Chanda
To one brave mother and father and one very brave little boy...we send our wishes to you.
I hope he stays safe and healthy through the procedure.
What wonderful parents you are.
In our thoughts now and forever
xxxx
It's hard for me to sit here and read this post because I know EXACTLY how you feel. I am trying hard not to cry at this public computer in the hospital. (we're here for Ben's apps.) This was such a hard decision for us too. My heart is aching for you as you and your husband are having to go through this. I will keep you guys in my prayers. Know that it won't be easy at first but he'll be so much better off after. You can do it! We're cheering for you all the way over here in NH. HUGS! Becky
April and Dallin-
I can only imagine what it must be like to watch your little boy suffer as he does. You have enough strength for the rest of us. I just don't know how you do it. Thank you for sharing your daily experiences. I love that you take Caleb out and let him enjoy the world. I know many families who leave their children in bed all day, thinking that is better...
You are definitely in our prayers as you face this surgery. It will be for the best.
Love,
Jeanne
Oh April. My prayers are with you!
You are more of an inspiration than you know. Good luck to you and you will be in our thoughts and prayers.
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